This is Robert and he was diagnosed with high risk Acute Lymphoblastic Leukemia on Dec.16, 2010. He has had a bumpy road. As they neared the end of treatment they found out that he has relapsed. He has an isolated central nervous system relapse. They will find out soon what the new treatments will entail. This will add a few more years of non stop chemo for this sweet boy. Please continue to pray for him and help raise awareness for childhood cancer! Follow his blog and stay informed on his progress and struggles.
This is his story in his mother's words.
On December 16 2010 my family’s life was forever changed. On that unforgettable night our little boy was diagnosed with cancer. It was almost unbelievable. Robert had seemed more tired than usual, coming home from school and wanting to sleep instead of play. He began to look a little pale, and upon the appearance of dark circles under his eyes I made an appointment with the Pediatrician. His doctor ran blood work, and within an hour we were on our way to Children’s Healthcare of Atlanta.
There are no words to describe the emotional tide that overcame my husband and me. The first few days were almost paralyzing. As we began to accept the situation, we moved into a phase of seemingly endless information seeking. We were immersed into a world of new procedures, terminologies, habits and concerns. After a few weeks we had begun to settle into our new routines, learn the things we needed to, and feeling more confident in our grasp of the situation.
Once we were finally home, we had a newfound appreciation for every night in our own bed. Our daily fate was settled by the thermometer. With Robert’s frail immune system, the slightest bug would cause an infection that his body couldn’t succumb. This would lead to a fever, and a trip to the ER. One of these ER visits lead to a relentless 16 day admission.
As we rounded the corner past the three year mark of intense treatment, we could see the end in our sights. But during a routine spinal tap several cancer cells were detected in his spinal fluid. Another tap was ordered and more cells could be seen. Robert had relapsed. To say we were devastated is an understatement. His official diagnoses, an Isolated Central Nervous System relapse of ALL. We would immediately stop the original treatment plan and begin a whole new two year intense protocol that involves much higher doses of chemotherapy, extensive hospital stays and crainial radiaition He has now been on that plan for over a year. Unfortunately after almost five straight years of cancer treatment, his little body is beginning to show signs of severe side effects. Things we know now will be a life long struggle.
Now Robert is in the maintenance phase of his treatment our lives have gotten slightly less chaotic. appointments, daily chemo and frequent side effects are still a part of our routine we are thankful for every day we get to spend as a family.
Throughout this whole journey of chemotherapy, spinal tabs, side effects, hospital stays, and family separation, Robert has shown such amazing strength. He’s never complained and has dealt with every situation better than I ever could. His smile is big and his laughter infectious. He has taught us what is important in life and what really matters.
If you don't know what these beads are they are Beads of Courage and they are an amazing organization. Look into them and HELP them continue their efforts!
#CUREchildhoodcancer #rallyforrobert #cancersucks#bethechangebaf #4isnotenough #rallyfoundation#brandyangelfoundation
— at Brandy Angel Photography.